About me
I am the Founder of the Vigilant Advocate, an organization dedicated to helping caregivers navigate the health system. The Vigilant Advocate is in early founding stages. Once operational, the organization will provide advocacy, resources, and support to caregivers of children with undiagnosed and complicated health issues through case manager and app based platforms.
I am building this organization to meet an unmet need, one that I experienced. When my middle son was eleven, he missed his entire 6th grade school year with an undiagnosed illness. While he was sick, without a diagnosis, we had little guidance or support. And despite having many privileges such as good health insurance, time to dedicate to his care and case, and resources in our community, we barely saw our way through. At the end of that year, through persistence and luck, we found that he had an allergy to indoor mold. It was a specific problem that we could fix and we got our boy back. He is now a healthy and happy 18 year old enjoying his senior year of high school.
I am not confused how fortunate we are in our outcome. After that experience, I became dedicated to creating a program to fill the many gaps caregivers experience in navigating healthcare. Hence, the Vigilant Advocate.